Share and Care Cockayne Syndrome Network, Inc.

General Organizational Information
Organization Name: 
Share and Care Cockayne Syndrome Network, Inc.
Year Established: 
1981
Mission Statement: 
Helping children with Cockayne syndrome and their families improve their quality of life through support, education and research.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
President
First Name: 
Jackie
Last Name: 
Clark
Address: 
PO Box 282
Waterford, VA, 20197
Phone: 
+1 703 727 0404
Email: 
cockaynesyndrome@gmail.com
Website Address: 
http://www.cockaynesyndrome.net/
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Medical referrals
Peer support
Other
Peer-to-peer counseling
Telephone helpline
Speakers
Other
Educational materials include: 
Video(s)/Movie(s)
Pamphlet(s)
Newsletter
Bibliography
Other
Conferences/workshops for: 
Researchers
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org