Scleroderma Foundation

General Organizational Information

Organization Name:

Year Established:

1982

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our three-fold mission is to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information, to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns, and to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Scleroderma

Organizational Contact Information

Title:

CEO

First Name:

Robert

Last Name:

Riggs

Address:

300 Rosewood Drive Suite 105

Danvers, MA, 01923

Phone:

+1 978 463 5843

Fax:

+1 978 463 5809

Toll Free Number:

+1 800 722 4673

Email:

sfinfo@scleroderma.org

Website Address:

http://www.scleroderma.org

Resources and Services Provided

Printed materials available in:

English

Portuguese

Spanish

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Medical referrals

Advocacy

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Membership directory

Conferences/workshops for:

Researchers

Professionals