Save Babies Through Screening Foundation, Inc.

General Organizational Information

Organization Name:

Year Established:

1999

Brochure thumbnail:

Brochure:

newbornscreening.pdf

Type of organization:

National organization

Mission Statement:

The mission of the Save Babies Through Screening Foundation is to improve the lives of babies by preventing mental retardation, disabilities and death from disorders detectable through newborn screening (the routine heelstick blood specimen). Our scope is to screen all newborns for all metabolic, endocrine and hematologic disorders already detectable through existing routine newborn screening programs.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Newborn Screening Disorders

Organizational Contact Information

Title:

President

First Name:

Jill

Last Name:

Levy-Fisch

Address:

4 Manor View Circle

Malvern, PA, 19355-1622

Fax:

+1 610 647 5757

Toll Free Number:

+1 1 888 454 3383

Email:

email@savebabies.org

Website Address:

http://www.savebabies.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Range of services include:

Referrals to matching individuals/families

Awareness programs

E-mail list

Telephone helpline

Speakers

Advocacy

Educational materials include:

Video(s)/Movie(s)

Pamphlet(s)

Newsletter

Website