Ryan's PKU Foundation

General Organizational Information
Organization Name: 
Ryan's PKU Foundation
Organization Acronym: 
RPKUF
Year Established: 
2009
Type of organization: 
State Condition(s)-specific organization
Mission Statement: 
Ryan?s PKU Foundation of Virginia is dedicated to providing a support network to individuals with PKU and their families and promoting PKU wellness through increasing public awareness, developing and distributing educational materials, supporting research and sharing information among families.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Prefix: 
Mr.
Title: 
President
Degree: 
BSN
First Name: 
Michael
Middle Initial: 
D
Last Name: 
Foust
Address: 
2127 Kingsley Lane
Chesapeake, VA, 23323
Phone: 
+1 757 558 1980
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Parents only
Media
Students
Researchers
Other
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Peer support
Other
E-mail list
Other
Educational materials include: 
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org