Rothmund-Thomson Syndrome Foundation

General Organizational Information

Organization Name:

Organization Acronym:

RTSF

Year Established:

2009

Brochure:

RTS Brochure.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The purpose of this corporation is to: promote awareness of Rothmund-Thomson Syndrome (RTS) and related syndromes to the general public and to healthcare professionals; provide education and support to affected families worldwide; provide education to healthcare professionals who may encounter patients affected with these disorders; promote research aimed at understanding the molecular cellular basis of RTS and the clinical manifestations; and raise funds through events and contributions that will support the overall efforts of the group.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Rothmund Thomson syndrome

Organizational Contact Information

Title:

Chairman, RTS Foundation

First Name:

John

Last Name:

Kimmel

Phone:

+1 703 802 3167

Fax:

+1 703 802 3167

Email:

kimmeljp@aol.com

Website Address:

http://www.rtsplace.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

Range of services include:

Peer Support

Awareness Programs

Educational materials include:

Pamphlet(s)

Website

Conferences/workshops for:

Affected individuals and/or families

Financial assistance for:

Transportation