RDH12 Fund for Sight

General Organizational Information

Organization Name:

Year Established:

2010

Type of organization:

Condition(s)-specific International

Mission Statement:

The RDH12 Fund for Sight is a nonprofit organization founded by parents of children diagnosed with LCA caused by mutations in RDH12 to accomplish three main goals: build a support network of families dealing with common issues and difficulties to share their experiences, raise awareness of LCA and RDH12 and gain a better understanding of the disease, and advocate for and fund development of a cure for LCA caused by RDH12.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Leber congenital amaurosis type 13

Organizational Contact Information

First Name:

Jennifer

Last Name:

Pletcher

Phone:

+1 951 977 3412

Email:

rdh12@rdh12.org

Website Address:

http://www.rdh12.org

Resources and Services Provided