Rachel's Well

General Organizational Information

Organization Name:

Rachel's Well

Year Established:

1999

Type of organization:

Condition(s)-specific organization

Mission Statement:

Rachel's Well in an innovative, multi-disciplinary non-profit organization committed to increaseing women's health research and education, particularly around the issues of menstrual health and primary ovarian insufficiency (POI).

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Galactosemia

Fragile X Syndrome

premature ovarian failure

Organizational Contact Information

Prefix:

Dr.

Title:

President

Degree:

PhD, MPH, CHES

First Name:

Evelina

Middle Initial:

Last Name:

Sterling

Address:

4880 Lower Roswell Road Suite 165, #610

Marietta, GA, 30068

United States

See map: Google Maps

Phone:

+1 770 643 7411

Fax:

+1 678 669 2083

Email:

evelina@rachelswell.org

Website Address:

http://www.rachelswell.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Peer-to-peer counseling

Medical referrals

Clinical or treatment centers

Genetic testing

Genetic counseling

Genetic information

Rehabilitation services

Referrals for non-medical services

Non-medical services

Advocacy

Training

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Bibliography

Research updates

Lending library

Resource guide

Membership directory

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals