Purine Research Society

General Organizational Information

Organization Name:

Organization Acronym:

PRS

Year Established:

1986

Type of organization:

Research institute or organization

Mission Statement:

The Purine Research Society is a public, nonprofit organization that has supported laboratory research on purine enzyme errors. The Society's goal is that newborn screening will follow, so children will be identified and treated at birth, and symptoms will never develop.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Purine Metabolic Diseases

Autism

Organizational Contact Information

Prefix:

Mrs.

First Name:

Tahma

Last Name:

Metz

Address:

5424 Beech Avenue

Bethesda, MD, 20814

United States

See map: Google Maps

Phone:

+1 301 530 0354

Fax:

+1 301 564 9597

Email:

PurineResearchSociety@verizon.net

Website Address:

http://www.PurineResearchSociety.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Educational materials include:

Website

Newsletter