Pulmonary Hypertension Association

General Organizational Information

Organization Name:

Organization Acronym:

PHA

Year Established:

1990

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Pulmonary Hypertension

Organizational Contact Information

Title:

Manager, Patient Outreach & Services

First Name:

Chanda

Last Name:

Causer

Address:

801 Roeder Road Suite 400

Silver Spring, MD, 20910

Phone:

+1 240 485 0777

Fax:

+1 301 565 3994

Email:

Chanda@phassociation.org

Website Address:

http://www.PHAssociation.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

Chinese

English

German

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Medical referrals

Referrals for non-medical services

Non-medical services

Political action

Advocacy

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Journal

Slides

Video(s)/Movie(s)

CD Roms

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals