Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Researchers
Other
Range of services include:
Referrals to research studies
Referrals to matching individuals/families
Peer support
Non-medical services
Other
Peer-to-peer counseling
E-mail list
Telephone helpline
Speakers
Loan of medical devices/equipment
Advocacy
Chat room
Other
Educational materials include:
Fact sheet(s)
Pamphlet(s)
Lending library
Newsletter
Website
Other
Conferences/workshops for:
Affected individuals and/or families
Public
Other
Financial assistance for: