The PSP Association

General Organizational Information

Organization Name:

The PSP Association

Year Established:

1994

Mission Statement:

The mission of the PSP Association is the conquest of PSP, through effective research, education, welfare and communication.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Progressive supranuclear palsy

Organizational Contact Information

Title:

Mrs.

Degree:

BA (Hons), FCIB

First Name:

Jane

Middle Initial:

Last Name:

Hardy

Address:

PSP House 167 Watling Street West

Towcester, NN12 6BX

Phone:

+1 1327 322410

Fax:

+1 1327 322412

Email:

psp@pspeur.org

Website Address:

http://www.pspeur.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Grief counseling

Referrals for non-medical services

Non-medical services

Crisis intervention

Other

Awareness programs

Political action

E-mail list

Telephone helpline

Clinical or treatment centers

Speakers

Training

Advocacy

Other

Educational materials include:

Fact sheet(s)

Magazine

Video(s)/Movie(s)

Slides

Journal articles on condition

Pamphlet(s)

Booklet(s)

CD Roms

Research updates

Newsletter

Bibliography

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other