Prune Belly Syndrome Network, Inc.

General Organizational Information
Organization Name: 
Prune Belly Syndrome Network, Inc.
Year Established: 
1996
Mission Statement: 
The specific purposes for which this corporation is organized are: To disseminate timely and accurate information about Prune Belly Syndrome to patients, family members, physicians, and other interested parties, to provide means for patients and relatives to share experiences, support one another, and improve their medical care, to encourage, advise, and establish standards for the diagnosis and treatment of Prune Belly Syndrome, to encourage and foster biomedical and other pertinent research on Prune Belly Syndrome, and to undertake all actions as deemed appropriate by the Board of Directors to carry out the forgoing purposes to the extent permitted under state and federal law.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
President
First Name: 
Lynn
Last Name: 
Brokus
Address: 
PO Box 3914
Oshkosh, WI, 54903-3914
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Medical referrals
Peer support
Referrals for non-medical services
Other
Peer-to-peer counseling
Other
Educational materials include: 
Other
Conferences/workshops for: 
Affected individuals and/or families
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org