Proteus Syndrome Foundation

General Organizational Information
Organization Name: 
Proteus Syndrome Foundation
Year Established: 
1996
Mission Statement: 
The Proteus Syndrome Foundation has been founded to support and educate familes and professionals, and to raise money for research to find a cure for individuals living with Proteus Syndrome.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
Executive Director
First Name: 
Kim
Last Name: 
Hoag
Address: 
6235 Whetstone Drive
Colorado Springs, CO, 80918
Phone: 
+1 719 264 8445
Email: 
abscit@aol.com
Website Address: 
http://www.proteus-syndrome.org
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Professional counseling
Medical referrals
Peer support
Referrals for non-medical services
Other
Peer-to-peer counseling
Speakers
Other
Educational materials include: 
Fact sheet(s)
Membership directory
Pamphlet(s)
Newsletter
Resource guide
Other
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Other
Financial assistance for: 
Medical care
Transportation
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org