Platelet Disorder Support Association

General Organizational Information
Organization Name: 
Platelet Disorder Support Association
Organization Acronym: 
PDSA
Year Established: 
1998
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
Our mission is to enhance the lives of patients with immune thrombocytopenic purpura and other platelet disorders.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Immune Thrombocytopenic Purpura
Organizational Contact Information
Title: 
Executive Director
First Name: 
Craig
Last Name: 
Conway
Address: 
133 Rollins Ave. Suite 5
Rockville, MD, 20852
Phone: 
+1 301 770 6636
Fax: 
+1 301 770 6638
Toll Free Number: 
+1 1 87 PLATELET
Email: 
pdsa@pdsa.org
Website Address: 
http://www.pdsa.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
Spanish
English
Information provided for: 
Affected individuals
Health care professionals
Families of affected individuals
The public
Teachers
Media
Students
Researchers
Other
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Medical referrals
Peer support
Referrals for non-medical services
Non-medical services
Other
Peer-to-peer counseling
Awareness programs
E-mail list
Telephone helpline
Clinical or treatment centers
Speakers
Pen pal program
Advocacy
Chat room
Other
Educational materials include: 
Fact sheet(s)
Video(s)/Movie(s)
Journal articles on condition
Pamphlet(s)
Booklet(s)
CD Roms
Research updates
Newsletter
Audiotape(s)
Website
Student materials
Other
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org