PKD Foundation

General Organizational Information

Organization Name:

PKD Foundation

Year Established:

1982

Mission Statement:

The PKD Foundation's mission is to promote research to find a cure for PKD and to improve the care and treatment of those it affects.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Government Relations Manager

First Name:

Dan

Last Name:

Lara

Address:

9221 Ward Parkway Suite 400

Kansas City, MO, 64114-3367

Phone:

+1 816 286 8480

Fax:

+1 816 931 8655

Email:

pkdcure@pkdcure.org

Website Address:

http://www.pkdcure.org

Resources and Services Provided

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Media

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer support

Other

Political action

Financial/estate planning

E-mail list

Speakers

Training

Advocacy

Other

Educational materials include:

Fact sheet(s)

Magazine

Pamphlet(s)

Booklet(s)

CD Roms

Research updates

Newsletter

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other