Pierre Robin Network

General Organizational Information
Organization Name: 
Pierre Robin Network
Year Established: 
1999
Mission Statement: 
Our purpose is to network families and individuals with PRS and provide information to anyone who has an interest.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Pierre Robin Sequence
Organizational Contact Information
Title: 
Founder
First Name: 
Nancy
Last Name: 
Barry
Address: 
3604 Biscayne
Quincy, IL, 62305
Phone: 
+1 217 224 7480
Fax: 
+1 217 224 0292
Email: 
help@pierrerobin.org
Website Address: 
http://www.pierrerobin.org
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Peer support
Other
E-mail list
Telephone helpline
Loan of medical devices/equipment
Chat room
Other
Educational materials include: 
Fact sheet(s)
Pamphlet(s)
Booklet(s)
Newsletter
Resource guide
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org