Periodic Paralysis Association

General Organizational Information
Organization Name: 
Periodic Paralysis Association
Organization Acronym: 
PPA
Branch/Affiliation: 
NON-PROFIT
Year Established: 
1998
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
To provide convenient access to science-based information to help better understand and manage the periodic paralyses. To stimulate interaction between the periodic paralysis community and various professional disciplines that may be able to bring light to this complex and often misunderstood collection of disorders. To provide the tools and a forum for open discussion of the diverse issues associated with these disorders. To promote an increasing level of awareness of these disorders, leading to increased research, improved management guidelines, improved diagnostic protocols, and ultimately, their prevention and cure
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Periodic Paralysis
Organizational Contact Information
First Name: 
Linda
Middle Initial: 
A
Last Name: 
Feld
Address: 
1331 Myrtle Drive
Longwood, 32750
United States
See map: Google Maps
Phone: 
+1 407 339 9499
Email: 
lfeld@cfl.rr.com
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Media
Researchers
Other
Range of services include: 
Referrals to research studies
Peer support
Other
Genetic testing
E-mail list
Telephone helpline
Genetic information
Clinical or treatment centers
Advocacy
Other
Educational materials include: 
Fact sheet(s)
Slides
Journal articles on condition
Research updates
Newsletter
Resource guide
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org