Parents and Researchers Interested in Smith-Magenis Syndrome

General Organizational Information

Organization Name:

Organization Acronym:

PRISMS

Branch/Affiliation:

None

Year Established:

1993

Brochure thumbnail:

Brochure:

prisms_broc.pdf

Mission Statement:

PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis syndrome and fostering partnerships with professionals to increase awareness and understanding.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Prefix:

Mr.

Title:

President

First Name:

Randy

Last Name:

Beall

Address:

21800 Town Center Plaza Suite #266A-633

Sterling, 20164

Phone:

+1 972 231 0035

Fax:

+1 972 499 1832

Email:

info@prisms.org

Website Address:

http://www.prisms.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer support

Peer-to-peer counseling

Awareness programs

E-mail list

Telephone helpline

Genetic information

Advocacy

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Lending library

CD Roms

Research updates

Newsletter

Audiotape(s)

Website

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Financial assistance for:

Scholarships