Parent Project Muscular Dystrophy

General Organizational Information

Organization Name:

Organization Acronym:

PPMD

Year Established:

1994

Type of organization:

Condition(s)-specific organization

Mission Statement:

Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne Muscular Dystrophy through research, education, advocacy and compassion.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Duchenne Muscular Dystrophy

Organizational Contact Information

Title:

Executive Director

Degree:

BSN, MS

First Name:

Patricia

Middle Initial:

Last Name:

Furlong

Address:

1012 North University Blvd

Middletown, OH, 45042

Phone:

+1 513 424 0696

Fax:

+1 513 425 9907

Toll Free Number:

+1 800 714 5437

Email:

pat@parentprojectmd.org

Website Address:

http://www.parentprojectmd.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Medical referrals

Genetic information

Loan of medical devices/equipment

Rehabilitation resource referrals

Referrals for non-medical services

Legal advice

Political action

Advocacy

Speakers

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Magazine

Website

Newsletter

Journal articles on condition

Bibliography

Research updates

Video(s)/Movie(s)

CD Roms

Audiotape(s)

Lending library

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals