Oto-Palatal-Digital Syndrome Family Resource Network

General Organizational Information
Organization Name: 
Oto-Palatal-Digital Syndrome Family Resource Network
Organization Acronym: 
OPD/FRN
Year Established: 
1997
Mission Statement: 
Our mission is to collect, compile and disseminate information on the rare disorder known as Oto-Palatal-Digital Syndrome and serve as a support system for new patients, parents of affected children and interested health care personnel.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Otopalataldigital Syndrome
Organizational Contact Information
First Name: 
Patricia
Middle Initial: 
M
Last Name: 
McCormick
Address: 
Phone: 
+1 952 215 5807
Email: 
info@opdsyndrome.org
Website Address: 
http://www.opdsyndrome.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Other
Other
Educational materials include: 
Bibliography
Website
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org