Osteogenesis Imperfecta Foundation

General Organizational Information

Organization Name:

Year Established:

1970

Type of organization:

Condition(s)-specific organization

Mission Statement:

We seek to improve the quality of life for people with OI through research to find treatments and a cure, education, awareness and mutual support.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Osteogenesis imperfecta

Organizational Contact Information

Title:

CEO

First Name:

Tracy

Last Name:

Smith Hart

Address:

804 West Diamond Avenue Suite 210

Gaithersburg, MD, 20878

Phone:

+1 301 947 0083

Fax:

+1 301 947 0456

Toll Free Number:

+1 800 981 2663

Email:

thart@oif.org

Website Address:

http://www.oif.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Japanese

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Adoption

Medical referrals

Clinical or treatment centers

Genetic information

Rehabilitation resource referrals

Referrals for non-medical services

Non-medical services

Political action

Advocacy

Training

Speakers

Pen pal program

Telephone helpline

E-mail list

Chat room

Services for the hearing impaired

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Bibliography

Research updates

Video(s)/Movie(s)

Audiotape(s)

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Researchers