Opsoclonus Myoclonus Support Network, Inc.

General Organizational Information
Organization Name: 
Opsoclonus Myoclonus Support Network, Inc.
Organization Acronym: 
OMS Support
Year Established: 
1997
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
The Opsoclonus Myoclonus Support Network recognizes the immediate need of Opsoclonus Myoclonus patients and their families to network with others affected by the syndrome, to have access to comprehensive information relating to the syndrome, and to be informed of the latest research, and recognizes the immediate need to have medical professionals better informed about the syndrome, its symptoms, history, etiology, and treatments. The Opsoclonus Myoclonus Support Network believes the syndrome's causes are discernible, and therefore advocates and supports research investigating the syndrome's neuro-biological and biochemical basis. Any person affected by the syndrome is considered a community member.
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Adult Opsoclonus Myoclonus Syndrome
Organizational Contact Information
Title: 
Co-Founder
Degree: 
D.O.
First Name: 
Sandra
Last Name: 
Greenberg
Address: 
2116 Casa Linda Dr.
West Covina, 91791
Phone: 
+1 626 919 2448
Resources and Services Provided
Languages spoken: 
English
Spanish
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Crisis intervention
Medical referrals
Clinical or treatment centers
Non-medical services
Political action
Advocacy
Telephone helpline
E-mail list
Educational materials include: 
Website
Newsletter
Journal articles on condition
Research updates
Resource guide
Membership directory
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org