Opitz G/BBB Family Network

General Organizational Information
Organization Name: 
Opitz G/BBB Family Network
Organization Acronym: 
Opitznet
Year Established: 
1994
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
Our mission is to offer emotional support and sharing of information for families affected by the challenges and joys of the Opitz syndromes.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Organizational Contact Information
Title: 
Founders
First Name: 
Willie & Jan
Last Name: 
Wharton
Address: 
PO Box 515
Grand Lake, CO, 80447
Phone: 
+1 970 627 8935
Fax: 
+1 970 627 8818
Email: 
opitznet@mac.com
Website Address: 
http://opitznet.org/index.html
Resources and Services Provided
Languages spoken: 
Spanish
English
Printed materials available in: 
Spanish
English
Information provided for: 
Families of affected individuals
Other
Range of services include: 
Peer support
Non-medical services
Other
E-mail list
Telephone helpline
Advocacy
Other
Educational materials include: 
Fact sheet(s)
Newsletter
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org