Oculo-Dento-Digital Dysplasia Support Group

General Organizational Information
Organization Name: 
Oculo-Dento-Digital Dysplasia Support Group
Organization Acronym: 
ODDD Support Group
Year Established: 
2009
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
Our goal is to bring people together with this disorder to share ongoing progress and unite in emotional support.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Oculodentodigital Dysplasia
Organizational Contact Information
Prefix: 
Mr.
Title: 
Group Leader
First Name: 
John
Middle Initial: 
W
Last Name: 
Quasney, Jr.
Address: 
8810 Orchard Road
Pikesville, MD, 21208
Phone: 
+1 410 580 0882
Email: 
aboutus@odddsupportgroup.com
Website Address: 
http://www.odddsupportgroup.com
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Families of affected individuals
Teachers
Legislators
Media
Students
Researchers
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Peer support
Other
Peer-to-peer counseling
E-mail list
Genetic information
Chat room
Other
Educational materials include: 
Research updates
Website
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org