Information provided for:
Affected individuals
Families of affected individuals
Care providers
Parents
Fathers
Mothers
Siblings
Grandparents
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include:
Referrals to local chapter or group
Referrals to matching individuals/families
Peer Support
Referrals for non-medical services
Non-medical services
Awareness Programs
Telephone helpline
E-mail list
Educational materials include:
Pamphlet(s)
Booklet(s)
Website
Journal articles on condition
Video(s)/Movie(s)
CD Roms
Resource guide