National Organization of Disorders of the Corpus Callosum

General Organizational Information

Organization Name:

Organization Acronym:

NODCC

Year Established:

2002

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and to raise the profile, understanding, and acceptance of these disorders through education, advocacy, networking and facilitating research efforts.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Agenesis of the Commissura Magna Cerebri

Agenesis of the Corpus Callosum

Organizational Contact Information

Title:

Family Partnership Program Director

First Name:

Donna

Last Name:

Doherty

Address:

PMB 363 18032-C Lemon Drive

Yorba Linda, CA, 92886

Phone:

+1 714 747 0063

Fax:

+1 714 693 0808

Email:

info@nodcc.org

Website Address:

http://www.nodcc.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Rehabilitation resource referrals

Awareness Programs

Advocacy

Speakers

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Bibliography

Slides

CD Roms

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Public

Professionals

Research Management:

Linking researchers and families