National Organization for Albinism and Hypopigmentation (NOAH)

General Organizational Information

Organization Name:

Year Established:

1982

Type of organization:

Condition(s)-specific organization

Mission Statement:

We provide information and support regarding albinism, promote public/professional education, facilitate networking and encourage research/funding that will lead to improved diagnosis/management.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Albinism

Organizational Contact Information

Title:

President

First Name:

Michael

Last Name:

McGowan

Address:

PO Box 959

East Hampstead, NH, 03826-0959

Phone:

+1 603 887 2310

Toll Free Number:

+1 800 473 2310

Email:

info@albinism.org

Website Address:

http://www.albinism.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Range of services include:

Referrals to local chapter or group

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Video(s)/Movie(s)

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Professionals