National Hemophilia Foundation

General Organizational Information

Organization Name:

Year Established:

2009

Mission Statement:

The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorder and to preventing the complications of these disorders through education, advocacy and research.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Hemophilia

Organizational Contact Information

Title:

Vice President for Communications

First Name:

John

Last Name:

Indence

Address:

116 West 32 Street 11th Floor

New York, NY, 10001

Phone:

+1 212 328 3700

Fax:

+1 212 328 3777

Toll Free Number:

+1 800 424 2634

Email:

info@hemophilia.org

Website Address:

http://www.hemophilia.org

Resources and Services Provided

Range of services include:

Referrals to local chapter or group

Professional counseling

Medical referrals

Peer support

Referrals for non-medical services

Crisis intervention

Telephone helpline

Clinical or treatment centers

Educational materials include:

Fact sheet(s)

Membership directory

Video(s)/Movie(s)

Slides

Pamphlet(s)

Lending library

Booklet(s)

Newsletter

Audiotape(s)

Bibliography

Resource guide

Conferences/workshops for:

Researchers

Professionals

Financial assistance for:

Scholarships