National Gaucher Foundation

General Organizational Information
Organization Name: 
National Gaucher Foundation
Organization Acronym: 
NGF
Year Established: 
1984
Brochure thumbnail: 
Brochure: 
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
In addition to raising millions of dollars to support and promote research towards the cause, treatments and a cure for Gaucher disease, the NGF's mission is to provide assistance and resources to families and individuals who are affected by the disease. To meet the ever-increasing needs of the Gaucher community, the NGF provides a wide range of financial, educational, legislative, mentor and outreach programs for families and individuals with Gaucher disease.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Gaucher Disease Type 1
Gaucher Disease Type 2
Gaucher Disease Type 3
Organizational Contact Information
Title: 
CEO/Executive Director
First Name: 
Rhonda
Middle Initial: 
P
Last Name: 
Buyers
Address: 
2227 Idlewood Road Suite 6
Tucker, GA, 30084
United States
See map: Google Maps
Phone: 
+1 770 934 2910
Fax: 
+1 770 934 2911
Toll Free Number: 
+1 800 504 3189
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Russian
Spanish
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Parents
Fathers
Mothers
Siblings
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Peer Support
Professional counseling
Crisis intervention
Medical referrals
Clinical or treatment centers
Genetic information
Rehabilitation resource referrals
Referrals for non-medical services
Non-medical services
Financial referrals
Political action
Awareness Programs
Advocacy
Speakers
Telephone helpline
Chat room
Educational materials include: 
Fact sheet(s)
Pamphlet(s)
Booklet(s)
Magazine
Website
Newsletter
Journal articles on condition
Slides
Video(s)/Movie(s)
CD Roms
Audiotape(s)
Resource guide
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Financial assistance for: 
Medical care
Transportation
Assistive devices
Scholarships
Cohort Development: 
Registry of affected individuals
Research Management: 
Awarding research grants
Providing information about clinical trials
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org