National Endowment for Alzheimer's Research

General Organizational Information

Organization Name:

Organization Acronym:

NEAR

Year Established:

2001

Type of organization:

Research institute or organization

Mission Statement:

At NEAR, our mission is to investigate the underlying causes of Alzheimer's and to develop rapid clinical interventions both for Alzheimer's and other brain disorders. A secondary mission is to promote public awareness and education with respect to Alzheimer's disease and related dementia, and to encourage the involvement of individuals, businesses, foundations, and government in finding a cure.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Alzheimer Disease

Alzheimer Disease Familial

Alzheimer Disease Type 1

Alzheimer Disease Type 2

Alzheimer Disease Type 3

Alzheimer's Disease without Neurofibrillary Tangles

Amyloidosis Cerebral

Amyotrophic Lateral Sclerosis

Mucopolysaccharidosis

Parkinson Disease

Pick disease of the brain

Organizational Contact Information

Title:

President

First Name:

Christopher

Last Name:

Janson

Address:

40 East Main Street, Suite #102

Newark, DE, 19711

United States

See map: Google Maps

Phone:

+1 302 722 6995

Email:

info@memorymatters.org

Website Address:

http://www.memorymatters.org

Resources and Services Provided

Languages spoken:

English

French

Russian

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Health care professionals

Researchers

The public

Media

Legislators

Range of services include:

Referrals to research studies

Medical referrals

Clinical or treatment centers

Genetic testing

Genetic information

Advocacy

Speakers

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Video(s)/Movie(s)

Conferences/workshops for:

Researchers

Professionals

Cohort Development:

Registry of affected individuals

Blood and Tissue Banking

Disease Characterization:

Epidemiological studies

Phenotype/genotype correlation studies

Organization has access to patient medical records

Major research interests of the organization:

Gene Therapy