National Down Syndrome Society

General Organizational Information

Organization Name:

Organization Acronym:

NDSS

Year Established:

1979

Mission Statement:

The National Down Syndrome Society's mission is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

President

First Name:

Jon

Last Name:

Colman

Address:

666 Broadway 8th Floor

New York, NY, 10012-2317

Phone:

+1 212 460 9330

Fax:

+1 212 979 2873

Toll Free Number:

+1 800 221 4602

Email:

info@ndss.org

Website Address:

http://www.ndss.org

Resources and Services Provided

Languages spoken:

Spanish

English

Printed materials available in:

Spanish

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Referrals for non-medical services

Other

Awareness programs

Political action

E-mail list

Telephone helpline

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

Booklet(s)

Newsletter

Bibliography

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Other

Financial assistance for:

Scholarships

Other