Printed materials available in:
Spanish
English
French
German
Italian
Portuguese
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Media
Students
Researchers
Other
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Medical referrals
Peer support
Other
Peer-to-peer counseling
E-mail list
Telephone helpline
Genetic information
Clinical or treatment centers
Speakers
Pen pal program
Advocacy
Other
Educational materials include:
Fact sheet(s)
Membership directory
Pamphlet(s)
Lending library
Research updates
Newsletter
Resource guide
Website
Other
Conferences/workshops for:
Financial assistance for: