Narcolepsy Network, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

Year Established:

1986

Brochure thumbnail:

Brochure:

narcolepsy_broc.pdf

Mission Statement:

Narcolepsy Network, Inc.'s mission is to: educate the public about narcolepsy and other related sleep disorders, support individuals with narcolepsy, their families and friends, promote the efficient diagnosis of narcolepsy, and encourage and promote research for narcolepsy.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Narcolepsy

Organizational Contact Information

Prefix:

Dr.

Title:

Executive Director

Degree:

MD, MPH

First Name:

Eveline

Last Name:

Honig

Address:

110 Ripple Lane

North Kingstown, RI, 02852

Phone:

+1 401 667 2523

Fax:

+1 401 633 6567

Toll Free Number:

+1 1 888 292 6522

Email:

EHonig@narcolepsynetwork.org

Website Address:

http://www.narcolepsynetwork.org

Resources and Services Provided

Languages spoken:

English

German

French

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Non-medical services

Peer-to-peer counseling

Awareness programs

Telephone helpline

Advocacy

Educational materials include:

Fact sheet(s)

Pamphlet(s)

CD Roms

Newsletter

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals