Nail Patella Syndrome Networking/Support Group

General Organizational Information

Organization Name:

Year Established:

1996

Type of organization:

General support or information organization

Mission Statement:

Our mission is to provideup-to-date information, support and networking opportunities to people with NPS, their families and their doctors.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Nail-Patella Syndrome

Organizational Contact Information

First Name:

Carol

Last Name:

Ferensak

Address:

Phone:

+1 000 0000

Email:

PACALI@aol.com

Website Address:

http://health.groups.yahoo.com/group/Nail_Patella_Syndrome/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Other

Range of services include:

Referrals to matching individuals/families

Peer support

Other

Peer-to-peer counseling

E-mail list

Pen pal program

Chat room

Other

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Other

Conferences/workshops for:

Other

Financial assistance for:

Other