Myotubular Myopathy Resource Group

General Organizational Information
Organization Name: 
Myotubular Myopathy Resource Group
Year Established: 
1994
Mission Statement: 
To support and educate families affected by myotubular myopathy and centronuclear myopathy.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Centronuclear Myopathy
Organizational Contact Information
First Name: 
Pamela
Last Name: 
Scoggin
Address: 
2602 Quaker Drive
Texas City, TX, 77590
Phone: 
+1 409 945 8569
Fax: 
+1 409 945 2162
Email: 
info@mtmrg.org
Website Address: 
http://www.mtmrg.org
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Other
Other
Educational materials include: 
Membership directory
Newsletter
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org