Myasthenia Gravis Foundation of America, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

MGFA

Year Established:

2009

Type of organization:

National Coalition/umbrella organization

Mission Statement:

Our mission is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Myasthenia gravis

Organizational Contact Information

First Name:

Tor

Last Name:

Holtan

Address:

355 Lexington Avenue 15th Floor

NY, NY, 10017

Fax:

+1 212 370 9047

Toll Free Number:

+1 800 541 5454

Email:

mgfa@myasthenia.org

Website Address:

http://www.myasthenia.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

Spanish

English

Italian

Portuguese

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Medical referrals

Peer support

Other

Awareness programs

Telephone helpline

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

Research updates

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Other

Financial assistance for:

Other