Mowat-Wilson Syndrome Support Group

General Organizational Information

Organization Name:

Year Established:

2009

Type of organization:

International Coalition/umbrella organization

Mission Statement:

To offer support to individual's with Mowat-Wilson Syndrome, as well as their families and other interested individuals. To raise awareness of Mowat-Wilson Syndrome.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Corpus Callosum Abnormalities

Organizational Contact Information

First Name:

Nigel

Middle Initial:

Last Name:

Lock

Address:

13 Barry Avenue Ingol

Preston, PR2 3XL

Phone:

+1 1772 760119

Email:

mwsupport@blueyonder.co.uk

Website Address:

http://www.mowatwilsonsyndrome.org.uk

Resources and Services Provided

Languages spoken:

English

French

German

Italian

Printed materials available in:

Spanish

Russian

Norwegian

Arabic

Braille

English

Finnish

French

German

Czech

Italian

Portuguese

Chinese

Greek

Swedish

Japanese

Information provided for:

Affected individuals

Mothers only

Grandparents only

Health care professionals

Care providers

Families of affected individuals

Fathers only

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Other

Awareness programs

E-mail list

Telephone helpline

Genetic information

Speakers

Chat room

Other

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Other

Financial assistance for:

Other