Mowat Wilson Support

General Organizational Information
Organization Name: 
Mowat Wilson Support
Year Established: 
2003
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
We are a support group and website where families can share information about Mowat-Wilson Syndrome. Our website includes support group information, a forum, photos and profiles of children with MWS and parent survey pages. We want to help inform the public about this rare condition and to help those affected by it not feel so alone by giving them a place to exchange information and experiences with others in the same situation.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Mowat-Wilson syndrome
Mental Retardation
Hirschsprung's disease
Microencephaly
Organizational Contact Information
First Name: 
Dave
Last Name: 
Curry
Phone: 
+1 702 658 5391
Resources and Services Provided
Languages spoken: 
English
German
French
Italian
Spanish
Printed materials available in: 
English
Information provided for: 
Families of affected individuals
Care providers
Parents
Health care professionals
The public
Teachers
Students
Legislators
Range of services include: 
Referrals to matching individuals/families
Peer Support
Genetic information
E-mail list
Educational materials include: 
Fact sheet(s)
Website
Slides
Video(s)/Movie(s)
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org