MLD Foundation

General Organizational Information

Organization Name:

MLD Foundation

Year Established:

2009

Brochure thumbnail:

Brochure:

mld _broc.pdf

Mission Statement:

We C.A.R.E. The MLD Foundation is focused exclusively on Metachromatic Leukodystrophy. We have four areas of purpose that start with people and families ... facilitating Compassion, increasing Awareness, influencing Research, and promoting Education. Our slogan, "We C.A.R.E." comes from these four areas of purpose.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Metachromatic leukodystrophy

Organizational Contact Information

First Name:

Dean

Last Name:

Suhr

Address:

21345 Miles Drive

West Linn, OR, 97068

Phone:

+1 503 656 4808

Fax:

+1 503 212 0159

Toll Free Number:

+1 800 617 8387

Email:

deansuhr@MLDfoundation.org

ListServe:

admin@mldfamily.org

Website Address:

http://www.MLDfoundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Grandparents only

Health care professionals

Care providers

Families of affected individuals

The public

Parents only

Siblings only

Media

Range of services include:

Referrals to matching individuals/families

Peer support

Awareness programs

E-mail list

Telephone helpline

Advocacy

Educational materials include:

Fact sheet(s)

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Financial assistance for:

Scholarships