Mid-Atlantic Connection for PKU and Allied Disorders

General Organizational Information

Organization Name:

Organization Acronym:

MACPAD

Year Established:

1998

Type of organization:

Regional organization

Mission Statement:

The mission of MACPAD is to enrich the lives of individuals and families of individuals with inherited metabolic disorders by disseminating information, providing supportive activities and encouraging the exchange of ideas.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Phenylketonuria (PKU)

Organizational Contact Information

First Name:

Robert

Middle Initial:

Last Name:

Johnstone

Address:

PO Box 6086

Lancaster, PA, 17607

Phone:

+1 717 872 7546

Email:

bjohnstone@macpad.org

Website Address:

http://www.macpad.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Mothers only

Grandparents only

Care providers

Families of affected individuals

Teachers

Legislators

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer support

Referrals for non-medical services

Non-medical services

Summer camp

Clinical or treatment centers

Speakers

Training

Advocacy

Educational materials include:

Membership directory

Newsletter

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.