Lynch Syndome International

General Organizational Information

Organization Name:

Organization Acronym:

LSI

Year Established:

2009

Type of organization:

Condition(s)-specific International

Mission Statement:

The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Muir-Torre Syndrome

Turcot syndrome

Hereditary Non-Polyposis Colorectal Cancer (HNPCC)

Lynch cancer family syndrome 2

Organizational Contact Information

Prefix:

Mrs.

First Name:

Linda

Middle Initial:

Last Name:

Bruzzone

Address:

P.O. Box 5456 143 Edmondale Court

Vacaville, CA, 95688

United States

See map: Google Maps

Phone:

+1 707 689 5089

Email:

info@lynchcancers.com

Website Address:

http://www.lynchcancers.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer Support

Professional counseling

Peer-to-peer counseling

Crisis intervention

Grief counseling

Medical referrals

Clinical or treatment centers

Genetic testing

Genetic counseling

Genetic information

Rehabilitation resource referrals

Referrals for non-medical services

Non-medical services

Financial referrals

Awareness Programs

Advocacy

Training

Speakers

Telephone helpline

E-mail list

Chat room

Educational materials include:

Pamphlet(s)

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Organizational

Research Management:

Linking researchers and families

Participant recruitment

Providing information about clinical trials