Lymphangiomatosis & Gorham's Disease Alliance

General Organizational Information

Organization Name:

Organization Acronym:

LGD Alliance

Year Established:

2007

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to improve the care of patients through our patient support programs, and by raising funds to support research that will identify effective treatments and cures. We strive to educate patients and families, and the medical and scientific communities, by providing important, relevant information, and by being the leading advocate for the worldwide member-community.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Lymphangiomatosis

Lymphatic Malformations

Gorham's Disease

Lymphangioma

Lymphatic Disease

Organizational Contact Information

Title:

President

First Name:

Jack

Last Name:

Kelly

Address:

P.O. Box 970153

Boca Raton, FL, 33497-0153

United States

See map: Google Maps

Phone:

+1 561 441 9766

Email:

jkelly@lgdalliance.org

Website Address:

http://www.lgdalliance.org/

Resources and Services Provided

Languages spoken:

English

French

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer Support

Medical referrals

Clinical or treatment centers

Awareness programs

E-mail list

Advocacy

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Newsletter

Website