Lowe Syndrome Association

General Organizational Information
Organization Name: 
Lowe Syndrome Association
Organization Acronym: 
LSA
Year Established: 
1983
Mission Statement: 
Our mission is to provide information on Lowe syndrome, foster communication among families, promote a better understanding of Lowe syndrome, and to encourage and support medical research.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
President
First Name: 
Deborah
Last Name: 
Jacobs
Address: 
18919 Voss Road
Dallas, TX, 75287
Phone: 
+1 972 733 1338
Email: 
info@lowesyndrome.org
Website Address: 
http://www.lowesyndrome.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Italian
Information provided for: 
Health care professionals
Care providers
Families of affected individuals
Teachers
Students
Researchers
Other
Range of services include: 
Medical referrals
Peer support
Other
E-mail list
Genetic information
Other
Educational materials include: 
Fact sheet(s)
Membership directory
Video(s)/Movie(s)
Pamphlet(s)
Booklet(s)
Newsletter
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org