Living with Trisomy 13 - Miracles in Progress

General Organizational Information
Organization Name: 
Living with Trisomy 13 - Miracles in Progress
Organization Acronym: 
LWT13
Branch/Affiliation: 
Trisomy 13 Support
Year Established: 
2004
Type of organization: 
Condition(s)-specific International
Mission Statement: 
LWT13 - An international group of families who have had a child diagnosed with Trisomy 13 – Patau Syndrome. Whether they are: on the prenatal journey...have a child living presently...or have a child who has died and still grieving. This is an amazing site where families through their own grief and pain, reach out to help others on this very unique journey with Trisomy 13. All these families have lived and are living with a Trisomy 13 diagnosis and the reality of how it changes lives.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Trisomy 13
Organizational Contact Information
Prefix: 
Mrs.
First Name: 
Therese Ann
Middle Initial: 
M
Last Name: 
Siegle
Address: 
15802 Springdale #68
Huntington Beach, CA, 92649
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Researchers
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Peer support
Educational materials include: 
Video(s)/Movie(s)
Journal articles on condition
Journal
Website
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org