Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Researchers
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Referrals to matching individuals/families
Peer support
Educational materials include:
Video(s)/Movie(s)
Journal articles on condition
Journal
Website