Linda Crnic Institute for Down Syndrome

General Organizational Information

Organization Name:

Organization Acronym:

LCI

Year Established:

2008

Type of organization:

Research institute or organization

Mission Statement:

The mission of the Linda Crnic Institute for Down Syndrome is to significantly improve the lives of all people with Down syndrome, and to eradicate the medical and cognitive ill effects associated with Down syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Down Syndrome

Organizational Contact Information

Title:

Executive Director

Degree:

MD, PhD

First Name:

Last Name:

McCabe

Address:

12631 East 17th Ave Mail Stop 8608

Aurora, CO, 80045

United States

See map: Google Maps

Phone:

+1 303 724 6574

Fax:

+1 303 724 5741

Email:

edward.mccabe@ucdenver.edu

Website Address:

http://www.ucdenver.edu/academics/colleges/medicalschool/institutes/lindacrnic/P...

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Help with adoption or placement

Medical referrals

Clinical or treatment centers

Genetic testing

Genetic counseling

Genetic information

Rehabilitation services

Referrals for non-medical services

Non-medical services

Political action

Awareness Programs

Advocacy

Training

Speakers

Educational materials include:

Website

Journal articles on condition

Research updates

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Disease Characterization:

Epidemiological studies

Phenotype/genotype correlation studies

Organization has access to patient medical records

Research Management:

Linking researchers and families

Participant recruitment

Initiating and conducting research

Providing information about clinical trials