LAM Foundation

General Organizational Information

Organization Name:

LAM Foundation

Organization Acronym:

LAM

Year Established:

1995

Type of organization:

Condition(s)-specific organization

Mission Statement:

The LAM Foundation urgently seeks a treatment-and ultimately a cure for LAM through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Lymphangioleiomyomatosis (LAM)

Organizational Contact Information

Title:

Executive Director

Degree:

First Name:

Jill

Last Name:

Raleigh

Address:

4015 Executive Park Drive Suite 320

Cincinnati, OH, 45241

United States

See map: Google Maps

Phone:

+1 513 777 6889

Fax:

+1 513 777 4109

Toll Free Number:

+1 877 287 3526

Email:

jraleigh@thelamfoundation.org

Website Address:

http://www.thelamfoundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

Chinese

English

German

French

Japanese

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Health care professionals

Researchers

The public

Students

Media

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer Support

Medical referrals

Clinical or treatment centers

Advocacy

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Bibliography

Slides

Research updates

Video(s)/Movie(s)

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Cohort Development:

Registry of affected individuals

Number of affected individuals registered:

1320