KS&A, Inc. (Klinefelter Syndrome & Associates)

General Organizational Information

Organization Name:

Organization Acronym:

KS&A

Year Established:

1990

Type of organization:

General support or information organization

Mission Statement:

KS&A helps individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

47, XXX

Organizational Contact Information

Title:

Executive Chairman

First Name:

Robert

Middle Initial:

Last Name:

Shelton

Address:

11 Keats Court

Coto de Caza, CA, 92679

Fax:

+1 949 502 7891

Toll Free Number:

+1 888 999 9428 41

Email:

help1@genetic.org

Website Address:

http://www.genetic.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Mothers only

Grandparents only

Health care professionals

Care providers

Families of affected individuals

Fathers only

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer support

Referrals for non-medical services

E-mail list

Telephone helpline

Speakers

Educational materials include:

Fact sheet(s)

Magazine

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Booklet(s)

CD Roms

Research updates

Newsletter

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals