Klinefelter's Syndrome Association of Canada

General Organizational Information

Organization Name:

Organization Acronym:

KSAC

Year Established:

1987

Type of organization:

General support or information organization

Mission Statement:

To support and facilitate the dissemination of information to those with Klinefelter Syndrome and their families

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Klinefelter Syndrome (47, XXY)

Organizational Contact Information

First Name:

David

Middle Initial:

Last Name:

Rabinovitch

Address:

Phone:

+1 289 240 2445

Email:

drabinovitch@hotmail.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Medical referrals

Rehabilitation resource referrals

Peer support

Referrals for non-medical services

Non-medical services

Other

Peer-to-peer counseling

Awareness programs

Political action

Genetic information

Speakers

Pen pal program

Advocacy

Other

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Booklet(s)

Research updates

Resource guide

Other

Conferences/workshops for:

Other

Financial assistance for:

Other