Klinefelter's Syndrome Association

General Organizational Information
Organization Name: 
Klinefelter's Syndrome Association
Organization Acronym: 
KSA
Branch/Affiliation: 
Iternational & National UK
Year Established: 
1990
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
In seeking to preserve and promote the health and the welfare of all persons affected by Klinefelter's Syndrome, the Association seeks to raise the profile of the condition with the medical profession, other public and private bodies and the general public so that all understand its implications, not only for the individual affected, but also for all those with whom they have contact during their lives.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Prefix: 
Vice Chair
Title: 
Dr
First Name: 
Povl
Middle Initial: 
C
Last Name: 
Larsen
Address: 
56 Little Yeldham Road Little Yeldham
Halstead, ESS, CO9 4QT
United Kingdom
See map: Google Maps
Phone: 
+1 44 0 150 3250 323
Toll Free Number: 
+1 845 230 0047
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Researchers
Other
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Peer support
Referrals for non-medical services
Other
Awareness programs
Political action
E-mail list
Telephone helpline
Genetic information
Speakers
Chat room
Other
Educational materials include: 
Fact sheet(s)
Journal articles on condition
Pamphlet(s)
Booklet(s)
Newsletter
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org