Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Researchers
Other
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Peer support
Referrals for non-medical services
Other
Awareness programs
Political action
E-mail list
Telephone helpline
Genetic information
Speakers
Chat room
Other
Educational materials include:
Fact sheet(s)
Journal articles on condition
Pamphlet(s)
Booklet(s)
Newsletter
Website
Other
Conferences/workshops for:
Affected individuals and/or families
Public
Researchers
Professionals
Other
Financial assistance for: