Klinefelter Syndrome Support of North Carolina

General Organizational Information
Organization Name: 
Klinefelter Syndrome Support of North Carolina
Year Established: 
2009
Type of organization: 
General support or information organization
Mission Statement: 
To empower, enrich and serve men with Klinefelter Syndrome and their families
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
47, XXY
Organizational Contact Information
First Name: 
Donna
Middle Initial: 
C
Last Name: 
Ginn
Address: 
1803 McManus Road
Midland, 28107
United States
See map: Google Maps
Phone: 
+1 704 241 3591
Email: 
healingbrokenplaces@gmail.com
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Families of affected individuals
The public
Other
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Medical referrals
Peer support
Referrals for non-medical services
Non-medical services
Crisis intervention
Other
Peer-to-peer counseling
Awareness programs
Genetic information
Respite care
Advocacy
Other
Educational materials include: 
Pamphlet(s)
Research updates
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Professionals
Other
Financial assistance for: 
Medical care
Scholarships
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org